healthcare

Resources and information
for respiratory therapy patients

Patient support institutions

Patients’ associations

AAC ─ Catalan Asthma Association

The Catalan Asthma Association is a non-profit organisation that aims to promote and develop the fight against asthma – including prevention, prophylaxis, treatment and rehabilitation – on both an individual and a society-wide level.

Website

adELA – Spanish Amyotrophic Lateral Sclerosis Association

adELA is a non-profit, public interest organisation founded in 1990 that operates across Spain. Website

AEACAP – Spanish Association for Those Affected by Lung Cancer

The Spanish Association for Those Affected by Lung Cancer seeks to provide psychological and human support to patients of this disease and their families.

Website

ASEM – Catalan Association of Neuromuscular Diseases

ASEM is a non-profit entity whose purpose is to care for people with neuromuscular diseases, their families and professionals who work and are in contact with this group.

Website

ASENARCO – Spanish Sleep Association

Asenarco is a self-help association created by people with sleep disorders. It is a non-profit organisation that also involves the patients’ families.

Website

Alpha-1 Spain Association

The Alpha-1 Spain Association is a patients’ organisation created in February 1999 to protect the interests of those affected by Alpha-1 antitrypsin deficiency and their families and carers.

Website

National Pulmonary Hypertension Association

The National Pulmonary Hypertension Association in Spain (ANHP) was founded in 2004 to offer professional, specialist assistance for people with pulmonary hypertension and their families or carers.

Website

Catalan Cystic Fibrosis Association

The Catalan Cystic Fibrosis Association was created on 18 June 1988 by a group of parents affected by this disease who saw the value in working together to benefit patients and their families.

Website

‘A tot pulmó’ Association for Those Affected by Chronic Respiratory Diseases

The ‘A tot pulmó’ Association for Those Affected by Chronic Respiratory Diseases is made up of people impacted by chronic respiratory diseases. It is a non-profit association that has been going since 1994.

Website

FCHP ─ Foundation Against Pulmonary Hypertension

The Foundation Against Pulmonary Hypertension (FCHP) is a non-profit organisation consisting of patients of pulmonary hypertension in any of its forms and their families and friends.

Website

Spanish Cystic Fibrosis Federation

The Spanish Cystic Fibrosis Federation is the body that brings together and represents 15 regional cystic fibrosis foundations with 4000 members across Spain.

Website

Spanish Federation of Sleep Medicine Societies

This federation’s purpose is to promote, facilitate, develop, authorise, certify and prepare sleep units created all over Spain.

Website

FENAER – Spanish Federation of Associations of People with Allergies and Respiratory Disease

The Spanish Federation of Associations of People with Allergies and Respiratory Disease – FENAER – is a non-profit organisation that seeks to promote all sorts of health-based, informative, educational and scientific initiatives and activities aimed at improving the lives of people with respiratory diseases.

Website

Miquel Valls Catalan Amyotrophic Lateral Sclerosis Foundation

This is a non-profit, private foundation created in 2005 in Calella (Barcelona) by Enric M. Valls, whose father died some years prior of ALS and gave the organisation its name.

Website

Spanish learned societies

Spanish Agency of Medicines and Medical Products (AEMPS)

The Spanish Agency of Medicines and Medical Products (AEMPS) is a state agency belonging to the Ministry of Health. It offers a public service, guaranteeing the quality, safety and efficacy of medicines and medical products and ensuring that the information given on them is correct.

Website

NEUMOPED – Spanish Paediatric Pulmonology Society

NEUMOPED is a non-profit medical-scientific association committed to studying respiratory disease in children.

Website

SEICAP – Spanish Society for Clinical Immunology and the Study of Allergies and Asthma in Children

SEICAP strives to strengthen the future of its field by continually improving the level of training, research and teaching among paediatric allergy specialists. It develops workshops, courses, master’s degrees and specialised training in various paediatric hospitals, through which clinicians can achieve European certification as Paediatric Allergy Specialists.

Website

SEPAR – Spanish Pulmonology and Thoracic Surgery Society

The Spanish Pulmonology and Thoracic Surgery Society (SEPAR) is a learned society made up of 5300 respiratory health professionals in Spain. This number includes almost all pulmonologists, thoracic surgeons, respiratory nurses and chest physiotherapists, alongside other specialists from Spain and elsewhere, with common interests.

Website

SES – Spanish Sleep Society

The Spanish Sleep Society is the biggest advocate for the development of sleep research and the promotion of sleep medicine in Spain.

Website

SOCAP – Catalan Pulmonology Society

The Catalan Pulmonology Society (SOCAP) was founded in Barcelona as a non-profit scientific organisation. It is a permanent legal entity with full powers to act in Catalonia and other Catalan-speaking areas.

Website

International bodies

American Association for Respiratory Care

The American Association for Respiratory Care (AARC) is an association of respiratory health specialists and similar professionals with an interest in cardiopulmonary care.

Website

European Respiratory Society

ERS is an international members’ organisation that brings together doctors, health professionals, scientists and other experts who work in respiratory medicine.

Website

European Sleep Research Society

The ESRS is an international, non-profit scientific organisation that promotes sleep research and sleep medicine.

Website

International Ventilator Users Network (IVUN)

This network connects ventilator users, medical professionals and related industries. IVUN is an affiliate organisation of Post-Polio Health International.

Website

World Sleep Society

World Sleep Society is a non-profit professional members’ organisation dedicated to promoting sleep health worldwide.

Website

Information resources for patients

Information and articles

Medscape

Medscape provides information and medical resources for various specialities. It filters and distributes up-to-date content from medical journal articles, texts by experts in different diseases, public health surveys, and more.

Website

National Library of Medicine

This is a search system that has compiled the US-based National Library of Medicine’s (NLM) databases. It covers fields such as medicine, nursing, public health and dentistry and was developed by the National Centre for Biotechnology Information (NCBI).

Website

Publications

Chest Journal

This is the official publication of the American College of Chest Physicians (CHEST) aimed at specialists in pulmonology, intensive care medicine, sleep, thoracic surgery, cardiorespiratory interactions and other related disciplines.

Website

JAMA Network

Peer-reviewed international journal on general medicine and various specialities.

Website

Health programmes and apps

Certified Medical Website (WMA)

Programme for certifying the quality of medical websites created by the College of Doctors of Barcelona.

Website

Health Unlocked

The biggest health social network in the world.

Website

Fundación ISYS app catalogue

Reliable health apps.

Website

World Sleep Society

World Sleep Society is a non-profit professional members’ organisation dedicated to promoting sleep health worldwide.

Website

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